Beckwith Wiedemann Children's Assn of NZ (Inc)
Assisting families and individuals affected with BWS
Home      BWS links
Print this pageAdd to Favorite
Below you will find links to some of the web sites, message boards, and resources that we have found on the internet.  We have also included links to BWS groups and associations in other countries for your reference.  If you have a link that you would like to be added to this list, please Email us
DISCLAIMER: Whilst these links are provided for your information, the views and opinions expressed by these sites are not necessarily shared by The Beckwith-Wiedemann Children's Association of New Zealand.
The Beckwith-Wiedemann Children's Foundation is a non-profit organization dedicated to increasing the quality of life for those affected by this rare, 1:14,000 birth disorder. There are many ways that you can join us in making a difference for these individuals and we welcome all who are interested.
Beckwith Wiedemann Parents Forum (USA Based Chat room)

The Parents Forum is a website where parents can go to contact other parents on the many topics that come up in the life of a child with Beckwith-Wiedemann Syndrome.

It is also where the BWSN maintains contact with the families.
The Beckwith Wiedemann Family Forum is a growing Internet community comprised of families from all over the world who are affected by BWS and got together in cyberspace in order to exchange support and information related to BWS between each other.
BWS Family Chat Forum (Message Board)
An international democratic group promoting the exchange of Beckwith-Wiedemann Syndrome (BWS) related information and support, as well as facilitating a lively discussion between group members.
This was started in 1990 by a group of parents with BWS children to share problems and information and to act as a self-help group. It aims to promote both public and professional awareness of BWS and to support and encourage research. The group has links with BWS groups in Holland and America.
Official web site of the Associazione Italliana Sindrome Di Beckwith-Wiedemann (The Italian Beckwith Wiedemann assn)
A Japanese BWS web site
Nederlandse Belangenvereniging van BWS. (Dutch Association of BWS).
Sweden Beckwith iedemann Support Group